Quality of Life in Patients Who Have Undergone Previous Treatment for Primitive Neuroectodermal Tumors
Brain and Central Nervous System Tumors, Cognitive/Functional Effects, Long-term Effects Secondary to Cancer Therapy in Children
About this trial
This is an observational trial for Brain and Central Nervous System Tumors focused on measuring long-term effects secondary to cancer therapy in children, psychosocial effects of cancer and its treatment, cognitive/functional effects, childhood supratentorial primitive neuroectodermal tumor
Eligibility Criteria
DISEASE CHARACTERISTICS: Surviving primitive neuroectodermal tumor (PNET) patients previously enrolled in International Pediatric Oncology Society (SIOP) 2 or 3 phase III treatment trials Surviving PNET patients eligible for and treated according to PNET 3 protocol but not randomized No metastatic disease at time of allocation to treatment No current progressive disease PATIENT CHARACTERISTICS: No patient deemed unsuitable for this study by treating clinician PRIOR CONCURRENT THERAPY: Not specified
Sites / Locations
- Our Lady's Hospital for Sick Children
- Birmingham Children's Hospital
- Institute of Child Health at University of Bristol
- Addenbrooke's Hospital at Cambridge University Hospitals NHS Foundation Trust
- Leeds Cancer Centre at St. James's University Hospital
- Leicester Royal Infirmary
- Royal Liverpool Children's Hospital, Alder Hey
- Royal London Hospital
- Great Ormond Street Hospital for Children NHS Trust
- Central Manchester and Manchester Children's University Hospitals NHS Trust
- Sir James Spence Institute of Child Health
- Queen's Medical Centre
- Oxford Radcliffe Hospital
- Children's Hospital - Sheffield
- Southampton General Hospital
- Royal Marsden NHS Foundation Trust - Surrey
- Royal Belfast Hospital for Sick Children
- Royal Aberdeen Children's Hospital
- Royal Hospital for Sick Children
- Royal Hospital for Sick Children
- Childrens Hospital for Wales