Evaluation of the Hospital2Home Palliative Care Service for Patients With Advanced Progressive Lung Disease (H2H-ILD)
Lung Disease

About this trial
This is an interventional supportive care trial for Lung Disease focused on measuring Advanced, Progressive, Idiopathic Fibrotic Interstitial Lung Disease, Palliative Care, Randomised, Controlled
Eligibility Criteria
Inclusion Criteria:
Patients i)Clinical diagnosis of PIF-ILD and a 30% survival at 1 year according to the validated prognostic tool developed by Professor Wells.(Appendix 5)
ii) Aged 18 years or over
iii) Any patient who does not meet any of the exclusion criteria
Carers i) The informal caregivers of patients specified above, who can be significant others, relatives, friends or neighbours
ii) Aged 18 years or over
iii) Any carer who does not meet the exclusion criteria
Health professional Primary health professional in contact with patient able to give consent
Exclusion Criteria:
Patients/informal caregiver i) Any patient/ informal caregiver unable to give informed consent
ii) Any patient/informal caregiver less than 18 years of age
iii) Participants who are unable to understand/speak English
iv) Participants who are remaining as an inpatient in the hospital or being transferred to another inpatient facility (eg hospice unit, for terminal care)
v) Participants whose prognosis is less than 1 week or judged too unwell by the research team to take part in serial interviews
Sites / Locations
- The Royal Marsden NHS Foundation TrustRecruiting
- The Royal Brompton NHS Foundation TrustRecruiting
Arms of the Study
Arm 1
Arm 2
Other
Other
Fast track
Waiting list
If patients are randomised to fast-track, their information will be passed to the H2H nurse to organise a case conference within one week of discharge.
If patients are in the control arm, they will continue to receive Standard Best Practice (SBP) and their data will be held by the researcher until after the second interview (4 weeks). After this time, they will be contacted by the H2H nurse to receive the intervention and will be interviewed and followed up as for the fast track group.