Improving OutcoMes in the Pediatric to Adult Care Transition in Inflammatory Bowel Disease (IMPACT-IBD)
Inflammatory Bowel Disease, Crohn Disease, Colitis, Ulcerative
About this trial
This is an interventional health services research trial for Inflammatory Bowel Disease focused on measuring Inflammatory Bowel Disease, Transition, Adolescent, Chronic Disease, Colitis, Ulcerative
Eligibility Criteria
Inclusion Criteria:
- This study comprises adolescent subjects recruited from the IBD clinics of the Hospital for Sick Children and McMaster Children's Hospital who meet the following inclusion criteria: (1) diagnosis of IBD; (2) at least age 16 years or older; (3) planning to undergo transition of care and will be followed by a gastroenterologist in either an academic center or the community; (4) have access to email or other means of telecommunication.
Exclusion Criteria:
- We will exclude any subjects who will not be residing in Canada or who will not be enrolled in the Ontario Health Insurance Plan (OHIP) after exiting pediatric care. Registration with OHIP, even if residing in a different province, is required for the monitoring of health utilization.
Sites / Locations
- McMaster University Medical Center
- Mount Sinai Hospital
- The Hospital for Sick Children (SickKids)
Arms of the Study
Arm 1
Arm 2
Experimental
Active Comparator
Regular telephone and email access to an IBD Nurse
Minimal Intervention
The IBD pediatric-adult transition nurse will send an email to each individual randomized to the intervention arm each month. The email will include the following: Brief Questionnaire;The Option For Direct Nurse Contact; Educational modules; MyHealth Passport and a Comprehensive Study Questionnaire.
The IBD pediatric-adult transition nurse will send an email to each individual randomized to the control arm every 3 months. The email will include the following: MyHealth Passport and Study Questionnaire. This intervention is not expected to significantly improve outcomes.