Evaluation of a Telephone Follow-up Procedure on the Quality of Life in Psychogenic Non-epileptic Seizures (EDUQ-CPNE)
Psychogenic Non Epileptic Seizure
About this trial
This is an interventional supportive care trial for Psychogenic Non Epileptic Seizure focused on measuring Quality of life, PNES, Epilepsy,
Eligibility Criteria
Inclusion Criteria:
- Patient above 18 years old
- Affiliation to social security
- Evolution disorders for over three months with at least 3 psychogenic non-epileptic seizures spaced over 24 hours and less than two years
- Diagnosis of PNES (associated or not with epilepsy) or laid confirmed following a video-EEG examination
- Standardized announcement of the disease made by a neurologist participant / PHRC training
- Good understanding of the French language
- Patient consented to participate in the study
Exclusion Criteria:
- Acute psychiatric pathology at the time of inclusion warranting urgent hospitalization (acute suicidal risk, Table delusional ...)
- Progressive neurological pathology intercurrent susceptible to aggravation for the duration of the study (glioma, multiple sclerosis, dementia ...)
- A patient who can not physically comply with the six-monthly review at the discretion of the investigator (planned move ...)
- Simultaneous participation to another therapeutic intervention study during the first 12 months
Sites / Locations
- Chu StrasbourgRecruiting
- Chu DijonRecruiting
- Chu ReimsRecruiting
- Chu NancyRecruiting
Arms of the Study
Arm 1
Arm 2
Experimental
No Intervention
Telephone follow-up device (DST)
Group control ; usual care
An external independent clinical psychologist is responsible for calling regular the patient included in DST-arm. Telephone follow-up device(DST) consists of telephone calls at 15 day, 2 month and then every 2 months until 12 months. The clinical psychologist is designed to inform the patient about its pathology, promote acceptance of diagnosis, support the patient in his approach to care encouraging psychiatric observation. The device does not replace psychiatric counseling recommended.
- Usual care: After diagnosis of PNES: orientation psychiatric care or CMP liberal and meeting biannually with the neurologist - For patients in both groups: in addition, quotation questionnaires of quality of life and evaluation by a neuropsychologist biannual for 24 months after the appointment with the neurologist.