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Build Your Parenting Toolkit: Guiding Children to Become Flexible Thinkers

Primary Purpose

Autism Spectrum Disorder (ASD), Developmental Disorder

Status
Completed
Phase
Not Applicable
Locations
Canada
Study Type
Interventional
Intervention
Build Your Parenting Toolkit Program
Sponsored by
Rehabilitation Centre for Children, Canada
About
Eligibility
Locations
Arms
Outcomes
Full info

About this trial

This is an interventional treatment trial for Autism Spectrum Disorder (ASD) focused on measuring Parents' ability to guide their child, Parent perception of competence, Parent understanding of their child's unique learning style

Eligibility Criteria

18 Years - undefined (Adult, Older Adult)All SexesDoes not accept healthy volunteers

Inclusion criteria:

- parents of children who have high functioning Autism Spectrum Disorder or high functioning developmental delay, and are aged 7-12

Exclusion criteria:

- unable to complete the study sessions

Sites / Locations

  • Rehabilitation Centre for Children

Arms of the Study

Arm 1

Arm Type

Experimental

Arm Label

Build Your Parenting Toolkit Program

Arm Description

Ten session program, with a mix of parents-only lectures and parent and child Cooking Clubs.

Outcomes

Primary Outcome Measures

Relationship Development Assessment
Video recordings of the parent and child cooking, used to evaluate the parents' responsiveness, communication and ability to stage engagements with their own child
Being a Parent Scale
This short questionnaire evaluates parent's current perceptions of a variety of common parenting situations and their emotional reactions

Secondary Outcome Measures

Cooking Club Feedback Questionnaires
These questionnaires will be used to evaluate whether the lecture sessions adequately prepared them for the related Cooking Club. These questionnaires will also help parents develop goals to work on at home.
Exit Questionnaire
Satisfaction questionnaire, to help improve the program in the future.

Full Information

First Posted
June 14, 2016
Last Updated
April 11, 2017
Sponsor
Rehabilitation Centre for Children, Canada
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1. Study Identification

Unique Protocol Identification Number
NCT02803801
Brief Title
Build Your Parenting Toolkit: Guiding Children to Become Flexible Thinkers
Official Title
Build Your Parenting Toolkit: Guiding Children to Become Flexible Thinkers. SCRC/LIFE Program Pilot Project
Study Type
Interventional

2. Study Status

Record Verification Date
April 2017
Overall Recruitment Status
Completed
Study Start Date
September 2016 (undefined)
Primary Completion Date
December 2016 (Actual)
Study Completion Date
April 2017 (Actual)

3. Sponsor/Collaborators

Responsible Party, by Official Title
Principal Investigator
Name of the Sponsor
Rehabilitation Centre for Children, Canada

4. Oversight

Data Monitoring Committee
No

5. Study Description

Brief Summary
This pilot project is a cooperative effort between the Leisure in Fun Environments (LIFE) Program and the Specialized Communication Resources for Children (SCRC) Program at the Rehabilitation Centre for Children (RCC). The investigators will blend and enhance two pre-existing programs in order to provide a new, specialized program for parents of children with ASD or developmental delay. The two programs that will be blended together are "Promoting Flexible Thinking and Interaction with Your Child at Home" and "Saturday Cooking Club." This new program will be a series of ten workshops that alternates between "parents only" learning sessions and practical "cooking club" sessions that allow parents to focus on practicing what they are learning with their child. These programs are based on the principles of Relationship Development Intervention (RDI®), which focuses on providing opportunities to establish a guided participation relationship, which will lead to development of dynamic intelligence and important social thinking abilities. The program is individualized to each child and builds on the principles of typical development to assist the child in achieving social competence. Using this program, children are expected to develop sociability in a naturally progressing order of complexity.
Detailed Description
Parenting children with developmental disabilities or Autism Spectrum Disorder (ASD) can be challenging. Often, these children process information in an atypical manner and they may struggle to learn through social engagement. At times, regular parenting techniques do not work with these children, which may leave parents feeling distressed and confused. In their ground breaking interpretation of the International Classification of Functioning, Health and Disability (ICF), The 'F-words' in childhood disability, (2011) Dr. P. Rosenbaum and Dr. J. Gorter state that, "Family represents the essential environment of all children." They point to research that confirms that parental physical and mental health is challenged in families who have a child with a disability. Specifically, behavioural issues of these children significantly contribute to parental stress scores, impact attachment, the relationship with a spouse, parental depression and in particular, a sense of competence. By providing parents the opportunity to understand their child's unique learning style, and the opportunity to learn how to mindfully engage their child, it is the investigators' goal to restore parental competence and the natural parent/child relationship. The objectives of this new learning series program are to help parents understand their child's unique learning style and to give parents the practical tools to become their child's best teacher and guide. Becoming a mindful parent requires a solid understanding of the child's underlying social learning challenges, and it requires parents to be both self-reflective and analytical. Behaviour change takes time and repeated experience. Parents also need the opportunity to practice in a safe and supportive environment. This learning series will consist of ten in-person sessions, over a period of 12-14 weeks.

6. Conditions and Keywords

Primary Disease or Condition Being Studied in the Trial, or the Focus of the Study
Autism Spectrum Disorder (ASD), Developmental Disorder
Keywords
Parents' ability to guide their child, Parent perception of competence, Parent understanding of their child's unique learning style

7. Study Design

Primary Purpose
Treatment
Study Phase
Not Applicable
Interventional Study Model
Single Group Assignment
Masking
None (Open Label)
Allocation
N/A
Enrollment
7 (Actual)

8. Arms, Groups, and Interventions

Arm Title
Build Your Parenting Toolkit Program
Arm Type
Experimental
Arm Description
Ten session program, with a mix of parents-only lectures and parent and child Cooking Clubs.
Intervention Type
Behavioral
Intervention Name(s)
Build Your Parenting Toolkit Program
Intervention Description
Ten session program, with a mix of parents-only lectures and parent and child Cooking Clubs.
Primary Outcome Measure Information:
Title
Relationship Development Assessment
Description
Video recordings of the parent and child cooking, used to evaluate the parents' responsiveness, communication and ability to stage engagements with their own child
Time Frame
14 weeks
Title
Being a Parent Scale
Description
This short questionnaire evaluates parent's current perceptions of a variety of common parenting situations and their emotional reactions
Time Frame
14 weeks
Secondary Outcome Measure Information:
Title
Cooking Club Feedback Questionnaires
Description
These questionnaires will be used to evaluate whether the lecture sessions adequately prepared them for the related Cooking Club. These questionnaires will also help parents develop goals to work on at home.
Time Frame
14 weeks
Title
Exit Questionnaire
Description
Satisfaction questionnaire, to help improve the program in the future.
Time Frame
14 weeks

10. Eligibility

Sex
All
Minimum Age & Unit of Time
18 Years
Accepts Healthy Volunteers
No
Eligibility Criteria
Inclusion criteria: - parents of children who have high functioning Autism Spectrum Disorder or high functioning developmental delay, and are aged 7-12 Exclusion criteria: - unable to complete the study sessions
Overall Study Officials:
First Name & Middle Initial & Last Name & Degree
Lianne Belton, OT
Organizational Affiliation
Rehabilitation Centre for Children
Official's Role
Principal Investigator
First Name & Middle Initial & Last Name & Degree
Carol Kehler, PT
Organizational Affiliation
Rehabilitation Centre for Children
Official's Role
Principal Investigator
Facility Information:
Facility Name
Rehabilitation Centre for Children
City
Winnipeg
State/Province
Manitoba
ZIP/Postal Code
R3E 3G1
Country
Canada

12. IPD Sharing Statement

Plan to Share IPD
No

Learn more about this trial

Build Your Parenting Toolkit: Guiding Children to Become Flexible Thinkers

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