Electronic Patient Reporting of Side Effects to Chemotherapy: A Cluster Randomized Controlled Trial
Primary Purpose
Adverse Event, Cancer, Breast, Chemotherapeutic Toxicity
Status
Completed
Phase
Not Applicable
Locations
Study Type
Interventional
Intervention
Completion of PRO-CTCAE items before consultation
Sponsored by

About this trial
This is an interventional supportive care trial for Adverse Event
Eligibility Criteria
Gender •Female: only female participants are being studied
Minimum age
•18 years
Maximum age •N/A
Accepts Healthy Volunteers
•No
Eligibility Criteria
Inclusion criteria
- Breast cancer patients starting adjuvant chemotherapy in the period November 1, 2015 - September 1, 2016 in Danish oncology clinics
Exclusion Criteria:
- More than six scheduled cycles of chemotherapy
- Not able to read and understand Danish language
Sites / Locations
Arms of the Study
Arm 1
Arm 2
Arm Type
Experimental
No Intervention
Arm Label
Electronic reporting of PRO-CTCAE items
Standard practice
Arm Description
Patients report PRO-CTCAE symptoms on a tablet computer before each cycle of chemotherapy
Outcomes
Primary Outcome Measures
Dose adjustments reported in the medication treatment sheet before each cycle of chemotherapy (5 time points with three weeks interval)
Secondary Outcome Measures
Number of hospitalizations reported in the medical record after each of the six cycles of chemotherapy
Febrile neutropenia reported in the medical record after each of the six cycles of chemotherapy
Detailed description of side effects in the medical record before start of chemotherapy and after each six cycles of chemotherapy
Handling of side effects documented in the medical record
Patients' experience of communication and handling of side effects measured in questionnaire survey and qualitative interviews
Patient and staff compliance as registerede by the software used
Full Information
NCT ID
NCT02996201
First Posted
November 4, 2016
Last Updated
October 17, 2017
Sponsor
Rigshospitalet, Denmark
Collaborators
Danish Cancer Society
1. Study Identification
Unique Protocol Identification Number
NCT02996201
Brief Title
Electronic Patient Reporting of Side Effects to Chemotherapy: A Cluster Randomized Controlled Trial
Official Title
Electronic Patient Reporting of Side Effects to Chemotherapy Among Breast Cancer Patients Using the Patient-Reported Outcomes Version of Common Terminology Criteria for Adverse Events (PRO-CTCAE): A Cluster Randomized Controlled Trial
Study Type
Interventional
2. Study Status
Record Verification Date
October 2017
Overall Recruitment Status
Completed
Study Start Date
November 2015 (Actual)
Primary Completion Date
January 2017 (Actual)
Study Completion Date
January 2017 (Actual)
3. Sponsor/Collaborators
Responsible Party, by Official Title
Principal Investigator
Name of the Sponsor
Rigshospitalet, Denmark
Collaborators
Danish Cancer Society
4. Oversight
Data Monitoring Committee
No
5. Study Description
Brief Summary
The aim of this study is to determine whether the use of breast cancer patients' own electronic reporting of side effects to chemotherapy in a treatment setting has an impact on the handling of side effects and on the number of hospitalizations, febrile neutropenia and dose adjustments. We are using the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) for the patients' reporting of side effects.
6. Conditions and Keywords
Primary Disease or Condition Being Studied in the Trial, or the Focus of the Study
Adverse Event, Cancer, Breast, Chemotherapeutic Toxicity, Patient Outcomes Assessments
7. Study Design
Primary Purpose
Supportive Care
Study Phase
Not Applicable
Interventional Study Model
Single Group Assignment
Masking
None (Open Label)
Allocation
Randomized
Enrollment
700 (Actual)
8. Arms, Groups, and Interventions
Arm Title
Electronic reporting of PRO-CTCAE items
Arm Type
Experimental
Arm Description
Patients report PRO-CTCAE symptoms on a tablet computer before each cycle of chemotherapy
Arm Title
Standard practice
Arm Type
No Intervention
Intervention Type
Other
Intervention Name(s)
Completion of PRO-CTCAE items before consultation
Intervention Description
Patients report PRO-CTCAE symptoms on a tablet computer before each cycle of chemotherapy
Primary Outcome Measure Information:
Title
Dose adjustments reported in the medication treatment sheet before each cycle of chemotherapy (5 time points with three weeks interval)
Time Frame
up to 18 weeks of treatment in the period betweeen November 1, 2015 and January 31, 2017
Secondary Outcome Measure Information:
Title
Number of hospitalizations reported in the medical record after each of the six cycles of chemotherapy
Time Frame
up to 18 weeks of treatment in the period betweeen November 1, 2015 and January 31, 2017
Title
Febrile neutropenia reported in the medical record after each of the six cycles of chemotherapy
Time Frame
up to 18 weeks of treatment in the period betweeen November 1, 2015 and January 31, 2017
Title
Detailed description of side effects in the medical record before start of chemotherapy and after each six cycles of chemotherapy
Time Frame
up to 18 weeks of treatment in the period betweeen November 1, 2015 and January 31, 2017
Title
Handling of side effects documented in the medical record
Time Frame
up to 18 weeks of treatment in the period betweeen November 1, 2015 and January 31, 2017
Title
Patients' experience of communication and handling of side effects measured in questionnaire survey and qualitative interviews
Time Frame
up to18 weeks of chemotherapy in the period November 1, 2015 - January 31, 2017
Title
Patient and staff compliance as registerede by the software used
Time Frame
up to 18 weeks (November 1, 2015 - January 31, 2017)
10. Eligibility
Sex
Female
Minimum Age & Unit of Time
18 Years
Accepts Healthy Volunteers
No
Eligibility Criteria
Gender •Female: only female participants are being studied
Minimum age
•18 years
Maximum age •N/A
Accepts Healthy Volunteers
•No
Eligibility Criteria
Inclusion criteria
Breast cancer patients starting adjuvant chemotherapy in the period November 1, 2015 - September 1, 2016 in Danish oncology clinics
Exclusion Criteria:
More than six scheduled cycles of chemotherapy
Not able to read and understand Danish language
12. IPD Sharing Statement
Plan to Share IPD
No
Citations:
PubMed Identifier
33837509
Citation
Pappot H, Baeksted CW, Nissen A, Knoop A, Mitchell SA, Christensen J, Hjollund NH, Johansen C. Clinical effects of assessing electronic patient-reported outcomes monitoring symptomatic toxicities during breast cancer therapy: a nationwide and population-based study. Breast Cancer. 2021 Sep;28(5):1096-1099. doi: 10.1007/s12282-021-01244-x. Epub 2021 Apr 9.
Results Reference
derived
PubMed Identifier
31832240
Citation
Baeksted CW, Nissen A, Knoop AS, Pappot H. Patients' experience of communication and handling of symptomatic adverse events in breast cancer patients receiving adjuvant chemotherapy. Res Involv Engagem. 2019 Nov 20;5:36. doi: 10.1186/s40900-019-0171-1. eCollection 2019.
Results Reference
derived
Learn more about this trial
Electronic Patient Reporting of Side Effects to Chemotherapy: A Cluster Randomized Controlled Trial
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