Implementation of the Live Donor Champion Program (LDC)
End-stage Renal Disease
About this trial
This is an interventional other trial for End-stage Renal Disease focused on measuring Live Donor Kidney Transplant, Education, Advocacy, Live Donor
Eligibility Criteria
Waitlist Candidates
Inclusion Criteria:
- Kidney transplant candidates aged≥18 added to the waitlist in the last year with no potential live donors are eligible.
- If there is an individual willing to donate, but the candidate is unwilling to consider this option or this particular individual, the candidate is eligible for the trial and may still benefit from identification of new donors or increased comfort accepting donation from others.
- Participants at University or University of Alabama must speak English. Participants at Northwestern University must speak English or Spanish.
Exclusion Criteria:
- Candidates with live donors currently under evaluation for donation will be excluded.
- Those with a previous kidney transplant will be excluded
Live Donor Champions Inclusion Criteria
- aged≥18
- English-speaking
- Be a "Live Donor Champion" (a friend, family member or community member willing to advocate for the wait-listed patient).
Exclusion Criteria
- <18, not English-speaking
LDC Administrators Inclusion Criteria
- aged≥18
- English-speaking
- Performed tasks related to implementing the LDC program
Exclusion Criteria
- <18, not English-speaking, and no affiliation with implementing the LDC program
Sites / Locations
- Washington University in Saint Louis
- University of Pennsylvania
Arms of the Study
Arm 1
Other
Live Donor Champion
The Live Donor Champion program is the sole educational intervention for this trial. LDC consists of 6 monthly sessions of approx. 1 hour each. Each LDC session is led by a transplant physician or clinical coordinator. LDC sessions incorporate formal didactics, active-participant learning, personal stories, moderated group discussions, role-playing, and other skill-building exercises. LDC sessions are as follows: 1) education about ESRD, KT, and LDKT 2) communication skills building 3) Exploring social networks 4) sharing successful donor and recipient stories 5) encouraging candidate self-efficacy 6) Program Recap.