Pilot Study of the Liver Live Donor Champion Program (LLDC)
End Stage Liver Disease
About this trial
This is an interventional other trial for End Stage Liver Disease focused on measuring Live Donor Liver Transplant, Education, Advocacy, Live Donor Champion
Eligibility Criteria
Inclusion Criteria:
- Active candidate on the liver transplant waitlist.
- Have no potential living donors at the time of study enrollment.
- Have not had a previous transplant
- be 18 years or older
- be English speaking
- Mentally capable of providing informed consent
Exclusion Criteria:
- Age less than 18 years old
- Has potential live donor candidates
- non-English speaking
- Previous liver transplant
- Listed for multiple organs
Sites / Locations
- The Johns Hopkins University
Arms of the Study
Arm 1
Experimental
Liver Live Donor Champion
The Liver Live Donor Champion program (LLDC) is the sole educational intervention for this trial. LLDC consists of 2 or 3 monthly sessions (depending on cohort) of approximately 2 or 3 hours each. Each LLDC session is led by a transplant physician or clinical coordinator. The sessions incorporate formal didactics, active-participant learning, personal stories, moderated group discussions, role-playing, and other skill-building exercises. LLDC session topics are as follows: 1) education about End-Stage Liver Disease (ESLD), liver transplantation, and living donation 2) communication skills building 3) Exploring social networks 4) sharing successful donor and recipient stories 5) surgeon and hepatologist panel 6) Program Recap.