BRIGHT Coaching Program for Families
Mental Health Wellness 1, Parent-Child Relations, Child Developmental Delay
About this trial
This is an interventional health services research trial for Mental Health Wellness 1 focused on measuring brain-based developmental disorders, child development, preschool skills and development, parenting stress, parenting mental health, coaching intervention, online education, parent peer support, developmental delay
Eligibility Criteria
Children are beginning to manifest delays in one or more domains of development, and they have been newly referred to a service to get assessed, diagnosed, and/ or for therapeutic intervention. Their families are thus in the early stages of their journey of getting assessment, diagnosis and/or intervention.
Inclusion Criteria:
- Children between the ages of 1.5 years to 4.5 years at enrolment;
- Suspected or confirmed delays in one or more developmental domains (such as motor, cognitive, speech, social and/or behavioural).
- Has been newly referred to a given service agency/program for assessment and/or intervention services (some services may have been provided in the past in infancy)
- Willing to participate in the study for 3 assessments: at enrolment; 8 months later, and 12 months later.
Exclusion Criteria:
- Non-English or non-French speaking;
- Unwilling or unable to participate in intermittent assessments (by phone or in-person).
- Do not have access on a routine basis to the internet through a desktop, laptop or mobile.
Sites / Locations
- Child Health BC, BC Children's Hospital, UBC
- Specialized Services for Children and Youth (SSCY) Centre
- Izaak Walton Killam (IWK) Health Centre
- Research Institute of McGill University Health Centre, Montreal Children's Hospital
Arms of the Study
Arm 1
Arm 2
Experimental
Other
Group 1 - Coaching
Group 2- Partial and delayed coaching
Upon enrollment to the study, parents in this group will have immediate access to the full intervention: Coaching: Telephone contact with coaches, who will provide information, education and support about the child's development. Coaching will be adapted to family needs, situation, preferences and child's condition. Online parent education: Parents will be provided access to empowering online tools, such as educational resources, chosen or developed by other parents and researchers. Peer support tools: Parents will have access to a secure online social media tool to connect to other parents going through a similar experience. Through this tool, parents can help support each other, and share their experiences and knowledge.
Parents in this group will have delayed and partial access to coaching, at the end of the 18-month period. Parents in this group will have a one-time session with a developmental coach who can give them guidance about their child's development. Parents in this group will also then get access to online parent education and peer support tools, indefinitely, until the online platform is de-activated. * Both arms/groups* will obtain usual care for their child, in addition and independent of full or partial coaching.