Self-Management in Parents of Technology-Dependent Children
Caregivers, Parents, Self-Management
About this trial
This is an interventional treatment trial for Caregivers focused on measuring Mental Health, Physical Health, Technology-Dependent Children
Eligibility Criteria
Inclusion Criteria:
- parent primary caregiver (biological, adoptive, or foster mother, father, grandmother, or grandfather) for a technology-dependent child based on the Office of Technology Assessment (OTA) classification criteria (Group 1, mechanical ventilators; Group 2, intravenous nutrition/medication; Group 3, respiratory or nutritional support);
- at least 18 years of age;
- able to speak and understand English;
- the technology-dependent child must be age 17.2 years or younger and receive care in the home from his/her parent. For children with more than one type of technology, we will follow OTA guidelines for classification.
Exclusion Criteria:
- Parents of children with a cancer diagnosis due to the short term use of technology following initial diagnosis and treatment
Sites / Locations
- University Hospitals Cleveland Medical Center
Arms of the Study
Arm 1
Arm 2
No Intervention
Experimental
Attention Control
Resourcefulness Training Intervention©
The Attention Control arm will receive weekly phone calls for the first 4 weeks and at 2 and 4 months post-enrollment plus the current standard of care, whereby caregivers phone their healthcare providers when they have questions or concerns
The Resourcefulness Training© arm will receive (a) individually tailored instruction on personal and social resourcefulness skills via the Resourcefulness Video and intervention nurse, (b) journal-writing instruction to describe resourcefulness application, (c) access to the study website with videotape vignettes and Resourcefulness Video, and (d) boosters at 2 and 4 months post-enrollment that will include reinforcement of skills learned and additional journal writing.