Clinic to Community© Program for Adults With Epilepsy Admitted to Emergency Departments (C2CEDRCT)
Epilepsy, Generalized
About this trial
This is an interventional supportive care trial for Epilepsy, Generalized focused on measuring Health Care Utilization, Emergency Department
Eligibility Criteria
Inclusion Criteria:
- Adults (aged ≥18 years) visiting a participating ED for a seizure or an epilepsy-related concern.
- Adults on anti-seizure medication prior to coming to the ED or prescribed anti-seizure medication at the ED.
- Providing informed consent and having sufficient English language skills to complete questionnaires and participate in the intervention.
Exclusion Criteria:
- Previous participation in the C2C program.
- Known diagnosis of psychogenic non-epileptic seizures (PNES).
Sites / Locations
- London Health Sciences CentreRecruiting
Arms of the Study
Arm 1
Arm 2
Experimental
Other
Intervention Group
Waitlist Control Group
Intervention Group. Participants randomized to the intervention group will complete the C2C program. They will receive an in-person one-on-one 60-minute education session and will be introduced to, and encouraged to participate in, the programs and support services that are provided by Epilepsy Southwestern Ontario (ESWO). As part of the C2C program, participants will be contacted 6 months later for a supplementary consultation over the telephone and to answer any questions. Epilepsy is unique among chronic, episodic disorders in that PWE lose their ability to make choices during a seizure and depend to a greater degree on the decisions of others including family, friends and colleagues. For this reason, we encourage the PWE to invite their support network to attend the patient education sessions.
Waitlist Control Group. The control group continues TAU and will be followed up 12 months after randomization. The control group will receive C2C after the 12-month follow-up.