Personalized Mobile App for Parents of Infants With Cardiac Disease (HOBS)
Congenital Heart Disease in Children, Stress, Psychological
About this trial
This is an interventional supportive care trial for Congenital Heart Disease in Children
Eligibility Criteria
Inclusion Criteria:
Infants below 3 months age diagnosed with severe heart disease at NICD at OUH
Exclusion Criteria:
a) Gestational age below 34 weeks b) Isolated arrhythmic disorders c) Language barriers d) Need of advanced home care with professional assistance
Sites / Locations
- Oslo University HospitalRecruiting
Arms of the Study
Arm 1
Arm 2
Experimental
Active Comparator
Access to mobile application
Treatment as usual
This application will help parents to recognize symptoms of reduced health status in their infant, provide decision-making support, increase their communication skills with health professionals, and provide easier access to quality assured information. At first login, the diagnosis, treatment, and contacts in the health service are registered to provide parents with personalized information that is adapted to their infant's needs. Under the guidance of healthcare personnel at the Neonatal Intensive Care Department (NICD) at Oslo University Hospital (OUH), parents are trained to assess their infant's condition, regarding circulation, breathing, eating habits, well-being, and more. In addition, before discharge, a baseline assessment of the infant's condition is stored in the application.
This group receives traditional oral and written information about their child's heart defect and further follow-up.