Physical Activity in Persons With Charcot-Marie-Tooth: Developing a Measurement Instrument
Hereditary Motor and Sensory Neuropathy, Charcot-Marie-Tooth, Polyneuropathies
About this trial
This is an interventional screening trial for Hereditary Motor and Sensory Neuropathy focused on measuring CMT, IPAQ, NMD, Charcot-Marie-Tooth, International Physical Activity Questionnaire, neuromuscular disorders, activity diary, hereditary neuropathy
Eligibility Criteria
Inclusion Criteria:
- Adults with a genetically confirmed CMT diagnosis.
- Residing in Norway
- Age between 18 to 65 years old.
Exclusion Criteria:
- Had major surgery within three months prior to the study period.
- Experiencing serious illness (e.g. bedridden, hospitalized).
Sites / Locations
- Oslo University Hospital
Arms of the Study
Arm 1
Arm 2
Experimental
Experimental
Group 1
Group 2
In the first week, this group will receive a physical activity diary and be required to fill it out for 7 days. After completion of the activity diary, group 1 will receive an original International Physical Activity Questionnaire short form (IPAQ-sf). Group 1 will be asked to fill it out with information about physical activities in the last 7 days. In the second week, the group will need to fill another physical activity diary for 7 days. After the completion of this, group 1 will be asked to fill a revised version of IPAQ-sf to describe physical activities in the last 7 days.
In the first week, this group will receive a physical activity diary and be required to fill it out for 7 days. After completion of the activity diary, group 2 will receive a revised version of International Physical Activity Questionnaire short form (IPAQ-sf). Group 2 will be asked to fill it out with information about physical activities in the last 7 days. In the second week, the group will need to fill another physical activity diary for 7 days. After the completion of this, group 2 will be asked to fill an original IPAQ-sf to describe physical activities in the last 7 days.