The Calgary Movement Disorders Advanced Care Pilot Program (ACT for PD)
Parkinson's Disease and Parkinsonism
About this trial
This is an interventional supportive care trial for Parkinson's Disease and Parkinsonism focused on measuring Palliative Care
Eligibility Criteria
Inclusion Criteria: Participants who have a PD diagnosis or another PDRD diagnosis (multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, or Lewy body dementia) Participants who have moderate to high PC needs based on the Palliative Care Needs Assessment Tool (PC-NAT) Participants who are between 20 and 100 years old Exclusion Criteria: Immediate and urgent palliative care needs. These patients will be offered appropriate services immediately Participants who have other illnesses that could require PC e.g. metastatic cancer Participants already receiving PC and/or hospice Patients with a diagnosis of severe cognitive impairment (Montreal Cognitive Assessment <10). These patients will be offered appropriate services. Care partners can participate.
Sites / Locations
- Movement Disorder Program, Foothills Medical Center, Alberta Health Services
Arms of the Study
Arm 1
Experimental
Palliative care
Participants will receive palliative care.