Living With CKD: An E-Learning Platform for Adolescents With CKD About the Disease and Its Management (CKD Delp)
Chronic Kidney Diseases, Chronic Kidney Disease stage3, Chronic Kidney Disease stage4
About this trial
This is an interventional supportive care trial for Chronic Kidney Diseases focused on measuring Chronic Kidney Disease, Disease Self-Management, Adolescent Health
Eligibility Criteria
Inclusion Criteria: 13-25 years old Been in Stage 1-5 CKD for at least 3 months or <1 year post transplant English Language fluency No significant intellectual or developmental delays Exclusion Criteria: Adolescents who participated in the Phase I feasibility testing or Phase II usability testing will be excluded from the pilot test due to their familiarity with the proposed product.
Sites / Locations
- University of North Carolina at Chapel Hill
- 3C Institute
Arms of the Study
Arm 1
Other
My Kidney Guru Intervention
Youth Participants with CKD will complete the 9 My Kidney Guru modules over the 6-month intervention period, at a rate of approximately one module every 2-3 weeks. Parent participants will complete the parent module within the first t2 weeks of the intervention period, and to review the remaining youth modules by the end of the trial period. Participants will complete outcomes measures within 1 month prior to beginning the intervention. Software usage data will be gathered regarding fidelity and dosage of the My Kidney Guru intervention. Within 1 month of completing the intervention period, participants will complete the same set of outcomes assessments, along with an evaluation survey of the intervention. Once post-intervention data collection has been completed and the intervention period has ended, participants will participate in a 45 minute follow up Web-Ex focus group to provide feedback on their experiences with My Kidney Guru and collect additional suggestions for improvement.