Care Plans for Cancer Predisposition
Genetic Predisposition
About this trial
This is an interventional supportive care trial for Genetic Predisposition focused on measuring genetic testing, genetic counseling, germline testing, digital care plan, cancer predisposition syndrome
Eligibility Criteria
Inclusion Criteria: Parents Parent or Legal Guardian of a patient with a known cancer predisposition syndrome diagnosed within the last 5 years Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP) Appropriate to approach per oncology team/cancer predisposition team No cognitive impairment limiting ability to complete measures Ability to read and speak English fluently Adolescent/Young Adult (AYA) probands Child proband with a known cancer predisposition syndrome diagnosed within the last 5 years Ages 12+ Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP) Appropriate to approach per oncology team/cancer predisposition team No cognitive impairment limiting ability to complete measures Ability to read and speak English fluently Exclusion Criteria: Not meeting any of inclusion criteria
Sites / Locations
- Children's Hospital of PhiladelphiaRecruiting
Arms of the Study
Arm 1
Experimental
Intervention: Digital Care Plans with Accompanying Text Messages
Investigators will recruit families and patients diagnosed with a Cancer Predisposition Syndrome within 3 years. Participants will be provided with a digital care plan and optional accompanying text message reminders.