Single-Session "Empowered Relief" Class for Marfan Syndrome and Related Conditions
Chronic Pain, Marfan Syndrome, Vascular Ehlers-Danlos Syndrome
About this trial
This is an interventional treatment trial for Chronic Pain
Eligibility Criteria
Inclusion Criteria: Male and females 18 years of age or older Marfan Syndrome, Vascular Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome or related connective tissue disease and chronic pain English fluency Ability to adhere to and complete study protocols Exclusion Criteria: Cognitive impairment, non-English speaking, or psychological factors that would preclude comprehension of material and/or full participation in the study.
Sites / Locations
Arms of the Study
Arm 1
Experimental
Empowered Relief
Empowered Relief is a 2-hour one session pain relief skills intervention that is delivered to a group of patients by a certified instructor using a standardized treatment manual and electronic slide deck. Content includes completion of a pain survey, pain neuroscience education, information on pain and stress responses, experiential exercises, information on three core pain management skills, completion of a personalized plan for empowered relief, and receipt of a binaural app for daily use.