Supporting Children and Young People to Live Well With Coeliac Disease
Celiac Disease, Celiac Disease in Children
About this trial
This is an interventional prevention trial for Celiac Disease focused on measuring celiac, wellbeing, quality of life
Eligibility Criteria
Inclusion Criteria: Caregiver(s) with a CYP between 8-11 years of age who report a diagnosis of coeliac disease Willingness to take part in a self-help psychological intervention Participant must have the ability to provide informed consent/assent. Caregiver(s) who consent to the study will still be able to take part, even if their CYP does not provide assent to complete outcome measures Exclusion Criteria: Families participating in another intervention-based research will not be eligible Participant identified by clinical team as not appropriate (e.g. undergoing treatment for other complex difficulties) English proficiency unsuitable for participation in self-help psychological intervention and/ or online survey.
Sites / Locations
- Bristol Royal Hospital for Children
- Royal Surrey County Hospital
- Oxford Children's Hospital
Arms of the Study
Arm 1
Arm 2
Experimental
No Intervention
Parent self-help psychological resource
Wait list control
A self-help psychological resource will be provided for parents to use with their CYP in the home.
Parents randomised to the control arm will be put on the waiting list (wait-list controls) to receive the group intervention after they have completed their final follow-up at 2 months.