Feasibility of Consumption of Nutritional Supplementation in Primary Ciliary Dyskinesia ((PCD))
Primary Ciliary Dyskinesia
About this trial
This is an interventional other trial for Primary Ciliary Dyskinesia
Eligibility Criteria
Inclusion Criteria: People aged 17 or over with a confirmed diagnosis of Primary ciliary dyskinesia PCD (nasal brushings) People who attend the Leeds Regional PCD Clinics People who have capacity to give informed consent Exclusion Criteria: People who are pregnant Those with existing co-morbidities such as malignancy People with connective tissue disorders and immunoglobulin deficiencies People with renal insufficiency r
Sites / Locations
- University of Leeds
Arms of the Study
Arm 1
Other
Study Population
Participants will be recruited and consented as part of routine care. All will trial supplement initially and have standard and additional measures taken. they will be followed up at month 1 and 2 collecting the primary outcomes (acceptability/palatability and dietary intake) and all initial measures repeated at month 3. Each participant will receive 3 months supply of gels to consume 2 per day.