AIR-B4: Mind the Gap (MTG)
Autism Spectrum Disorder, Neurodevelopmental Disorders
About this trial
This is an interventional treatment trial for Autism Spectrum Disorder focused on measuring new diagnosis, autism services, Mind the Gap, navigating program
Eligibility Criteria
Inclusion Criteria:
- families of children age 2 to 8 with ASD or NDD. no receipt of ASD specific services outside of school (family may still qualify if child is connected with a regional center/EI, but not yet receiving services), defined as (a) services obtained through insurance based on having an ASD diagnosis; or (b) receiving services through 0-3 that can only be accessed with an ASD dx (e.g., intensive in home EIBI); (3) family income is under 250% of the federal guidelines for poverty rate; (4) English, Korean or Spanish speaking.
- agency staff (coordinators, directors, managers, supervisors) working on community organizations with peer navigator capacity e.g. parent support centers; FQHC; community clinics; faith-based agencies) serving children with ASD and other NDD (neurodevelopment disorders).
- peer navigators which include people working at participating community organizations with peer navigator capacity (e.g. parent support centers; FQHC; community clinics; faith-based agencies) serving children with ASD and other NDD (neurodevelopment disorders)
Exclusion Criteria:
- families with children under the age of 2 or over 8 years of age, does not have ASD or NDD; parents are not fluent in English, Spanish, or Korean; child already receiving services accessed with an ASD diagnosis; family income is over 250% federal guidelines for poverty rate
- Agency Staff: people not working in an organization that has a peer navigator capacity; cannot commit to the requirements of the study.
- Peer Navigators: people not working in an organization that has a peer navigator capacity; cannot commit to the times and requirements of the study
Sites / Locations
- UC Davis MIND InstituteRecruiting
- University of Kansas
- University of RochesterRecruiting
- UPENN
Arms of the Study
Arm 1
Arm 2
Experimental
Active Comparator
UNITED
Implementation as Usual (IAU)
UNITED is premised on the idea that successful implementation in organizations like schools and early intervention systems requires a team-based approach, in which the team is thoughtfully assembled, develops a plan for implementation, assigns roles and responsibilities, and carefully tracks and supports implementation and sustainment in all its stages within a few meetings and ongoing coaching from the research staff.
The organizations will implement Mind the Gap as usual. The research team will be available to provide support on the Mind the Gap intervention as needed.