Intervention to Improve Supportive Care for Family Caregivers of Patients With Lung Cancer
Lung Cancer
About this trial
This is an interventional supportive care trial for Lung Cancer focused on measuring family caregiver, quality of life, supportive care, distress screening, needs assessment
Eligibility Criteria
Inclusion Criteria:
- Relative identified by patients diagnosed with inoperable lung cancer as their principal family caregiver; having a family physician
Exclusion Criteria:
- Cognitive disorder
Sites / Locations
- Institut universitaire de cardiologie et pneumologie de Québec (IUCPQ)
Arms of the Study
Arm 1
Arm 2
Experimental
No Intervention
Experimental: supportive care
Control: usual care
Family caregivers (FC) in the experimental arm (supportive care) will be exposed to a multi-faceted intervention to help them cope with their caregiving role, support them and respond to their needs; the intervention includes 3 components: 1) systematic distress screening and problems assessment of FCs at 2-month interval during the study period; 2) privileged contact with an oncology nurse away from the patient to further identify and address FCs' problems; 3) liaison by the oncology nurse with the family physician of FCs fwho will have reported high distress or needing help
In the control arm (usual care), FCs will assist to their relative initial visit to the pivot nurse in oncology (PNO) . The PNO screens patients for distress and assesses their needs. She does a bio-psycho-social comprehensive evaluation and may provide help and information. She responds to questions and refers to appropriate resources, staying available for patients and their FCs throughout the cancer care trajectory. However, most PNO interventions target the patient, with no systematic distress screening and problems assessment for FCs, nor any service and resource specifically dedicated to them. If FCs clearly express distress or particular needs, the PNO will address them or refer to appropriate resources, but, in usual care, only few FCs receive support services