Palliative Care Planner (PCplanner)
Interstitial Lung Disease, Idiopathic Pulmonary Fibrosis
About this trial
This is an interventional supportive care trial for Interstitial Lung Disease focused on measuring palliative care, advance care planning
Eligibility Criteria
Inclusion Criteria:
- Patient has diagnosis of idiopathic pulmonary fibrosis
- Patient has GAP (gender, age, physiology) index score ≥ 4
- Patient is established in interstitial lung disease clinic (i.e., has had at least 1 previous clinic visit)
Exclusion Criteria:
- Patient lacks fluency in English sufficient to complete study surveys
- Patient is already seeing palliative care or enrolled in hospice
- NEST score <10 at baseline T1
Sites / Locations
- Duke University Medical Center
Arms of the Study
Arm 1
Arm 2
Experimental
No Intervention
PCplanner mobile app platform
Usual Care
Participants who are randomized to the intervention arm will complete surveys at 3 timepoints and will be given resources on advance care planning via PCplanner, the mobile app platform. They will receive a telephone call by the study team about a week after enrollment to answer any questions about the resources provided. If needs and questions are not resolved quickly after the clinic visit, then another layer of patient support with a telephone call by a palliative care specialist will be provided to the participant to help develop potential management plans.
Participants who are randomized to the usual care arm will complete surveys at 3 timepoints and receive usual care by pulmonary clinician.