Parenting Training for Children With FASD (SF-FASD)
Fetal Alcohol Spectrum Disorder
About this trial
This is an interventional treatment trial for Fetal Alcohol Spectrum Disorder focused on measuring FASD, pFAS, ARND, Fetal Alcohol Syndrome, Partial Fetal Alcohol Syndrome, Alcohol Related Neurodevelopmental Disorder, Static Encephalopathy (Alcohol Exposed), Neurobehavioural Disorder (Alcohol Exposed)
Eligibility Criteria
Inclusion Criteria:
- Have a child between 4-12 years of age with a diagnosis which falls under the umbrella term "Fetal Alcohol Spectrum Disorder" as reported by parents/caregivers.
- The child has been experiencing behavioural problems (as defined by the caregiver) for at least 6 months prior to study screening.
- Have been the primary caregiver for a minimum of 6 months prior to entry into the study.
- Have a reasonable expectation of being be the primary caregiver for at least 6 months after study enrolment.
- Read, write, and understand English.
- Have access to a telephone.
- Have access to a computer connected to the Internet.
- Live in Canada.
- CBCL Externalizing t-Score must be ≥64 (clinical range)
- The child meets criteria for behaviour suggestive of FASD
- No suicide attempts within the previous 6 months
- No current risk of suicide attempts
Exclusion Criteria:
- Child is NOT able to speak in full sentences or understand everyday language and instructions.
- Parent/caregiver has previously taken part in a Strongest Families Parenting Program.
- Parent/caregiver OR child has been diagnosed with Psychosis.
- Child does not have a diagnosis of schizophrenia, bipolar disorder or major depression.
- Child does not put others as risk of serious harm (i.e., requiring medical attention).
- Parent/caregiver has not completed any of the following parenting programs in the last 6 months: Triple P, COPE, Incredible Years.
Sites / Locations
- IWK Health Centre
Arms of the Study
Arm 1
Arm 2
Experimental
Active Comparator
The Strongest Families FASD intervention
Psychoeducation
It is a web-based parent training program with a coach. The program is comprised of 11 sessions, each focusing on a different parenting strategy, delivered using easy to read text, instructional videos and audio clips. One Booster Session is conducted 1 month after completion of Session 11.
It is a static webpage on IRIS providing FASD information and resources, including recommended book titles, websites and organizations that may be helpful.