Peer Mentoring to Improve Self-management in Youth With IBD
Pediatric Crohns Disease, Pediatric Ulcerative Colitis, Inflammatory Bowel Diseases
About this trial
This is an interventional prevention trial for Pediatric Crohns Disease
Eligibility Criteria
Inclusion Criteria:
Mentees:
- Diagnosis of IBD
- Age 10 - 17 years
- Parent and child English fluency
- No documented neuro-developmental disorder or history of hospitalization for a psychiatric or behavioral disorder
Mentors:
- ≥16 years
- ≥1 year post-diagnosis of IBD
- Managing their IBD well
- Pass a screening that includes an online application, interview, 3 character references, checks of driving records and social media, background check, mentor training
Exclusion Criteria:
Mentees: No documented neuro-developmental disorder or history of hospitalization for a psychiatric or behavioral disorder
Sites / Locations
- Abigail Wexner Research Institute at Nationwide Children's HospitalRecruiting
Arms of the Study
Arm 1
Arm 2
Experimental
Active Comparator
Mentoring program
Educational activity program
The Mentoring Program consists of year-long, 1:1 mentee-mentor relationships with group educational activities, online educational information, and a parent support component. Mentors and mentees are expected to have weekly contact (e.g., text, phone), with in-person contact 1 - 2 times per month. Group educational topics include nutrition, stress, IBD and school, and disease management, and are taught by experts in each content area. They also provide opportunities to socialize with other mentors and mentees: lunch and games are provided before or after the educational event. Parents participate in a social/support group facilitated by an Investigator while mentees and mentors are socializing. Parents join the mentees and mentors for the educational topics. Due to the COVID-19 pandemic, these activities can be conducted virtually.
The Educational Activity comparison group consists of separate educational group events on the same topics (with no social time), educational information posted online, and monthly encouragement to engage in activities in the community. Due to the COVID-19 pandemic, participants are encouraged to interact socially in safe ways, e.g., outdoors or virtually.