Evaluating Innovations in Transition From Pediatric to Adult Care - The Transition Navigator Trial (TNT)
Diabetes, Endocrine System Diseases, Gastro-Intestinal Disorder
About this trial
This is an interventional health services research trial for Diabetes focused on measuring transition, young adults, transfer
Eligibility Criteria
Inclusion Criteria:
- has a chronic medical condition (defined as conditions which are >3 months in duration and/or lifelong with multiple morbidities and/or multi-organ/system manifestations or condition with typically affect a single organ/system), who are expected to be transferred to adult specialty follow-up
- Last planned pediatric visit within up to 12 months after assessment of eligibility
Exclusion Criteria:
- cannot consent in English
- moving out of province within 24 months
- enrolled in another transition navigator study
Sites / Locations
- Alberta Children's Hospital
- Glenrose Rehabilitation Hospital
- Stollery Childrens Hospital
Arms of the Study
Arm 1
Arm 2
Experimental
Other
Patient Navigator Arm
Usual Care Arm
Patient Navigator (Social Worker) will assist youth adapt and attach to adult delivered healthcare for up to 24 months. Participants will receive 5 issues of a provincial generic newsletter on topics around transition. Participants will be asked to complete a health questionnaire at baseline and 4 more times during 24 months. Participants will be asked to complete a transition readiness questionnaire at baseline and 4 more times during 24 months. Participants will be provided the opportunity to journal online about their experiences. Up to 100 participants will be provided the opportunity to be interviewed at baseline and end of study about their transition experience.
Youth will receive usual care from their pediatric clinics in preparation and transfer to adult care. Participants will receive 5 issues of a provincial generic newsletter on topics around transition. Participants will be asked to complete a health questionnaire at baseline and 4 more times during 24 months. Participants will be asked to complete a transition readiness questionnaire at baseline and 4 more times during 24 months. Participants will be provided the opportunity to journal online about their experiences.