Managing Fatigue in People With Parkinson's Disease (MFIP)
Parkinson Disease
About this trial
This is an interventional supportive care trial for Parkinson Disease focused on measuring Parkinsons disease, Self-management, Fatigue management, Occupational therapy
Eligibility Criteria
Inclusion Criteria:
All participants must:
- Be adults living in Nova Scotia,
- Self-report Parkinson's disease, and fatigue severe enough to interfere with daily life (measured by a score of ≥4 on the FSS).
- Read and speak in English
- Have access to the internet, an electronic device and a private place for Zoom videoconferences.
- Provide informed consent prior to participation.
Exclusion Criteria:
People will be excluded from the study if :
- They have previously completed the study program (IMFP )
- They have co-morbidity that causes severe fatigue (e.g. heart failure, cancer)
- They indicate a severe cognitive deficit in the MMSE test ( MMSE <13).
Sites / Locations
- Dalhousie University
Arms of the Study
Arm 1
Arm 2
Experimental
No Intervention
Managing Fatigue:The Individual Program
Control Group
Participants in the experimental group will receive the 6-week MFIP. Individuals in experimental group : will participate in six one-to-one sessions (each takes 60 to 90 minutes) will complete the Feasibility Questionnaire #1, after each session (10 questions) (Appendix 6) will complete Feasibility Questionnaire #2 after completing all six-sessions (12 questions) (Appendix 7) will complete the post-test measurement after completion of the program (approximately 60 minutes to complete) will complete the follow-up measurement, three months after the completion of the program (approximately 60 minutes to complete) will be advised to continue with their current healthcare services. may participate in one focus group (one-hour session)
Participants in the control group will not receive the IMFP and they will be advised to continue with their current healthcare services. Participants in the control group: will complete post-test measurements after 6 weeks (approximately 60 minutes), will complete the follow-up measurements three months later after completing the program (approximately 60 minutes). will be advised to continue with their current healthcare services. Following the study, participants in the control group will be offered the manual of the program and a three-hour training workshop after (three months after the baseline testing). In this workshop, they will learn about the about the program, including the pre-session activities, in-session activities, and homework. This workshop will be conducted by occupational therapists.