Community Outreach for Palliative Engagement -- Parkinson Disease (COPE-PD)
Parkinson Disease Dementia, Parkinson Disease, Parkinson's Disease and Parkinsonism
About this trial
This is an interventional treatment trial for Parkinson Disease Dementia
Eligibility Criteria
Inclusion Criteria:
PATIENT INCLUSION CRITERIA:
• Over age 40 years and diagnosed with PD or other causes of parkinsonism, such as progressive supranuclear palsy, multiple system atrophy and Lewy Body Dementia by their community neurologist.
Exclusion Criteria:
PATIENT EXCLUSION CRITERIA:
- Potential patient subjects who are unable or unwilling to commit to study procedures
- Presence of additional medical illnesses which requires palliative services (e.g. metastatic cancer)
- Already receiving palliative care or hospice services.
Sites / Locations
- University of Rochester Medical Center for Health + TechnologyRecruiting
Arms of the Study
Arm 1
Arm 2
Other
Other
Usual Care
Online Community-Supported Palliative Care Intervention
Community neurologists provide their usual care to enrolled participants. The clinicians may utilize other community resources to support patients and families as per their usual practice.
Community neurologists get training in palliative care via teleconferences (ECHO model), in addition to other support from our team. Patients and carepartners will also have access to additional support services when their providers enter the intervention (Online support groups, tailored education)