Therapeutic Education for MSA Patients and Their Caregivers (ETP@MS)
Multiple System Atrophy
About this trial
This is an interventional diagnostic trial for Multiple System Atrophy focused on measuring TherapeuticEducationProgram, Feasibility
Eligibility Criteria
Inclusion Criteria: Patients who have had a clinically probable diagnosis of MSA within the last 3 years or clinically established within the last year Presence of a caregiver defined as a spouse, son/daughter or relative who lives with or sees the patient on a regular basis, i.e. at least three times a week. Exclusion Criteria: Patients and/or caregiver unable to give consent Patients without access to an internet network or without the material means to access the distance learning modules Patients with a life expectancy of less than one year Patients with legal guardians, curators, or legal protection Patients not affiliated to a social security system Patients in a period of exclusion from another study
Sites / Locations
- CHU ToulouseRecruiting
Arms of the Study
Arm 1
Experimental
Experimental patients
MSA patients included in the therapeutic education program