A Study of Caregiver Connections Via Technology in Dementia
Caregiver Stress, Dementia, Alzheimer Disease
About this trial
This is an interventional supportive care trial for Caregiver Stress
Eligibility Criteria
Inclusion Criteria: The participant must have a family member that has been diagnosed with one of the following forms of dementia: Parkinson's/Lewy body dementia, any frontotemporal lobar degeneration dementia, or Alzheimer's dementia. The participant must identify as a care partner or caregiver who has contact with their loved one with dementia, in person or by phone, and provides social/emotional support and full or partial assistance with daily activities at least 3 days per week. The participant must have been caring for their loved one with dementia for at least 3 months. All participants must have access to a computer and be able to use the internet. All participants must be English speaking. All participants must agree to participate in the 15-month study, which includes completing questionnaires, brief "virtual" interactions with the study coordinator quarterly, and actively interacting with the website and potential matches. All participants must agree to follow-up contact throughout the duration of the study, which is anticipated to last 3 years. Exclusion Criteria: Caregiver's loved one does not have a confirmed diagnosis of dementia. Caregiver is unable to provide consent. Caregiver was or has been in that role for less than 3 months.
Sites / Locations
- Mayo Clinic RochesterRecruiting
Arms of the Study
Arm 1
Arm 2
Experimental
Active Comparator
Algorithmically Matched
Randomly Matched
Individuals that identify as a current and/or former caregiver for a person with dementia will be matched to other caregivers using an algorithm that matches a caregiver to another caregiver based on specific preferences each caregiver identifies in a questionnaire.
Individuals that identify as a current and/or former caregiver for a person with dementia will be randomly matched to other caregivers not based on the preferences they identified in a questionnaire.