Physical Activity in Children With Inherited Cardiac Diseases
Long QT SyndromeBrugada Syndrome3 moreUse lay language. Current guidelines regarding physical activity in patients with inherited arrhythmia and cardiomyopathy are mostly dedicated to adult patients, with a special focus on sports competition. Their application to the pediatric population has been scarcely evaluated. Physical activity is well known for its health benefits but may be dangerous in this population, which leads to confusion within the medical community and among patients. Actual physical activity of children with such inherited cardiac disorders is unknown. This study aimed to assess the level of physical activity in children with inherited arrhythmia and cardiomyopathy, and the adherence to the current European guidelines on the subject. Secondary objectives aimed to assess through a qualitative analysis the impact of the disease on physical activity and daily life in this population. The level of physical activity and adherence to current guidelines will be determined from interviews between the patient and the principal investigator. Each patient will be questioned in order to explore the experiences, motivations and feelings of participants regarding physical activity. The standardized questionnaire was created by the principal investigator and members of the clinical research team. The investigators believe that many children practice physical activity outside the current guidelines and hope to identify the main determinants of physical activity in this population.
Brugada Syndrome and Artificial Intelligence Applications to Diagnosis
Brugada Syndrome 1Aim of the project is the development of an integrated platform, based on machine learning and omic techniques, able to support physicians in as much as possible accurate diagnosis of Type 1 Brugada Syndrome (BrS).
The Turkish Version of the Medial Tibial Stress Syndrome Score
Medial Tibial Stress SyndromeThe medial tibial stress syndrome (MTSS) score was originally developed in Dutch to assess severity of disease relative to patient-reported outcome, particularly patients with MTSS. The purpose of this study was to translate and cross-culturally adapt the MTSS score into Turkish and investigate its psychometric properties.
Online Information on Myofascial Pain Syndrome
Myofascial Pain SyndromeDiffuseThe investigators aim in this study is to evaluate myofascial pain syndrome (MPS) related websites in terms of the quality and the readability of the information. Also, to identify the typologies of websites that provide high-quality information about MPS.
Clinical Efficacy of Conservative Treatment in Female Patients With Plevic Congestion Syndrome
Pelvic Congestion SyndromeThe article presents the results of a randomized, placebo-controlled study of the conservative treatment with Daflon (Detralex) in female patients with Pelvic congestion syndrome .
A Maralixibat Expanded Access Program for Patients With Cholestatic Pruritus Associated With Alagille...
Alagille SyndromeAn open-label, single-arm, multi-centre program providing treatment access to ALGS patients with cholestatic pruritus in the US. Access can be requested through Clinigen Healthcare Ltd via email MirumALGS@clinigengroup.com or telephone +1-877-768-4303.
Interstitial Lung Diseases in Primary Sjogren's Syndrome
Sjogren's SyndromePatients with pSS seen in the Division of Rheumatology, the second affiliated hospital of Zhejiang University, School of Medicine (SAHZU) during January 2016 to July 2018, were retrospectively reviewed. Characteristics were analyzed.
Correlation Between Pupil Size and Ocular Signs of Pseudoexfoliation Syndrome
Pseudoexfoliation SyndromePseudoexfoliation Glaucoma in Both Eyes1 moreTo study possible correlation between the size of the pupil in both room light and after dilation between both eyes in bilateral pseudoexfoliation with Intraocular pressure, lens clarity and stability, Optic disc , Visual changes and glaucoma changes by optical coherence tomography
Physical Status of OSA Patients
Obstructive Sleep Apnea SyndromeTo investigate the differences in postural stability, anxiety/depression, and quality of life of the patients according to the severity of Obstructive Sleep Apnea Syndrome.
Pattern of Dyslipidemia Among Patients With Acute Coronary Syndrome at Sohag University Hospital...
Acute Coronary SyndromeIn this study, I am aime to analyze lipid profile in patients with ACS who presents at sohag university hospital, and its clinical and complications pattern.